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World Haemophilia Day 2022: Theme

World Haemophilia Day:

World Haemophilia day is celebrated on 17th April every year, aiming to increase awareness about haemophilia and other inherited bleeding disorders.

  • The day is celebrated in the honour of Frank Schnabel, founder of the World Federation of Haemophilia (WHF).
  • This year’s (2022) theme is “Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy”.

Haemophilia:

  • Haemophilia is a medical condition, mostly inherited, in which the ability of blood to clot is severely reduced, so that even a minor injury can cause severe bleeding.
  • Haemophilia is caused by a mutation or change, in one of the genes, that provides instructions for making the clotting factor proteins needed to form a blood clot.
  • This change or mutation can prevent the clotting protein from working properly or to be missing altogether. These genes are located on the X chromosome.
  • Because of the genetics involved in the way the sex of a child is determined, men are more vulnerable to haemophilia than women.
  • It is quite a rare disease, about 1 in 10,000 people are born with it.
  • The most common type of Haemophilia is called Haemophilia A.
  • This means the person does not have enough clotting factor VIII (factor eight).
  • Haemophilia B is less common.
  • A person with Haemophilia B does not have enough factor IX (factor nine).
  • Haemophilia A, occurs in about 1 in 5,000 births, while Haemophilia B is even rarer at about 1 in about 20,000 births.
  • Symptoms:
    • Big bruises.
    • Bleeding into muscles and joints.
    • Spontaneous bleeding (sudden bleeding inside the body for no clear reason).
    • Prolonged bleeding after getting a cut, removing a tooth, or having surgery.
  • The main treatment for Haemophilia is Replacement Therapy.
  • Concentrates of clotting factor VIII (for Haemophilia A) or clotting factor IX (for Haemophilia B) are slowly dripped or injected into a vein. These infusions help replace the clotting factor that is missing or low.

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